My Cancer Journey XI

My Cancer Journey XI

What I am posting today was written at the beginning of my Chemo treatments. Tomorrow (February 14th) will mark treatment #10 of 12 as well as Valentine’s Day, Ash Wednesday, and my 70th Birthday. As I prepare this particular chapter, the thought hit me; if we knew what the future held when we started on a particular journey, would we still go through with it?

Food for thought.

By the way, there are two chapters this week.

The First Cycle

October 9th through the 13th included appointments with three different doctors (or nurse practitioners), the infusion, two sets of labs and a return visit to return a pump I would get on Wednesday (10/11).

My first Monday visit was with my Oncologist’s nurse practitioner. I saw it as sort of a final “Pep Rally” for what was to come. I still had lots of questions needing to be answered. Carol was with me on this visit so that she might answer questions that I may not have even thought of. Having a nurse as a wife comes in handy from time to time. This time, knowing that I had an opportunity to ask more questions, I prepared ahead, writing questions on note cards, making certain that I had the right questions I needed to ask.

That session went extremely well. I appreciate the fact that my questions were answered in a straightforward manner.

The second medical encounter was with Texas Vision and Lazer Center. I had been with them for several years due to a referral from my optician. There was concern that because my Maternal Grandmother had Glaucoma in the last part of her life, I might be subject to the same disease. On an earlier visit, TVLC determined that I was developing Cataracts, so, we’ve been keeping tabs on the Cataracts.

There was a gap between my visit to Texas Oncology and TVLC which we used to do a little restocking with Costco and to grab a sandwich. Costco was easy. Grabbing the sandwich was a little trickier. We only had so much time between Costco and my appointment with TVLC. The sandwich shop we decided on was a bit slower than it could have been, causing me to have to boot having to eat the sandwich until later.

My sandwich (a Wagyu Beef Sub) was well worth the wait and was good for two meals.

TVLC was only doing some preliminary testing which lasted no more than fifteen minutes. Another visit was scheduled for the following Monday.

My visit with My PCP allowed me enough time to go home, pet Filbrix, eat half of my sandwich, and a leisurely drive over the river and through the woods to the good doctor’s office.

“You won’t believe what’s happened since the last time I saw you.”

It had been three months since I had seen my PCP, and a week and a half until a scheduled “Wellness Visit” as part of Medicare. He was unaware of my failed Trifecta in July, my diagnosis, the operation, and the port. We concentrated on my right leg and what needed to be done so I could walk normally. (The crutches and the wheelchair had been retired by the time of this visit.)

After the business with the leg, he and I talked about my upcoming Chemotherapy session. He assured me that I had the right Oncologist for the job (he once had an office near my Oncologist) and that he stated (tongue firmly in cheek) the best thing about her is that she was one of very few people shorter than he is. 

I reminded him of our upcoming Well Visit and the labs he ordered on the 12th. After pondering a moment, he and I agreed that blood work done on the 12th would be rather useless since I would be pumping chemicals into my veins. That would throw the whole purpose of getting blood work in the first place.

All the ducks were in a row for Wednesday and Friday. Except one.

There was a deductible involved.

I got the call on Tuesday afternoon and was given a figure that would have caused trouble had I not been prudent with the household finances over the previous several months. Being operated on and then having to go through Chemotherapy ain’t cheap.

Wednesday morning. I had been bracing for Wednesday morning for the better part of a month – not knowing what to expect, despite having been briefed on what would come to be when I got there.

I took two bags with me containing what I thought I might need for my first infusion session. As a precaution, I arranged for rides to and from the center. Before my ride arrived, I showered, shaved, and before getting dressed, applied a Lidocaine ointment on top of the skin on top of the port. Lidocaine is a topical anesthetic used to keep the insertion of a needle into the port from causing me discomfort. To keep the Lidocaine in place, I had a clear bandage covering the port site provided from a stock Carol had in reserve.

The ducks were in a row.

My ride to the infusion center came almost precisely at the time he needed to be there, getting me to the infusion center with no problems. My driver had a few stories about his encounters with cancer, including an ongoing struggle with prostate cancer, and pointing out where a niece of his would be opening a restaurant after the first of the year in a block of buildings under construction.

I walked into the infusion center filled with apprehension of what would happen to me that morning and in the next couple of days.

Fortunately there were lots of friendly faces to greet me every step of the way with the process.

 

The Process

To be clear, the infusion center is integral with the Oncologist’s office which is integral with Baylor Scott White – McKinney.

When I arrived at the infusion center, I was already familiar with at least some of the office layout and was prepared to an extent as to what would happen.

After getting checked in and making the four-figure deductible payment, it was hurry up and wait for blood work, followed by hurry up and wait to go into the infusion center proper.

What I found out later in the process was the blood work needed to be analyzed to prepare the proper doses of the medicines I needed. While I was sitting in a waiting room for my turn to come, my Oncologist and a Pharmacist were determining what medicines I needed, in what dose.

After attempting to read for a while, I finally decided that if I were to start going through my Facebook feed, I would be called in and at least that part of the wait would be over. It worked. After only five minutes with my phone, I was called back to the infusion room.

It started with the usual – blood pressure, heart rate, oxygenation, weight. Preliminaries done; I was shown to a chair in a section of the room where no one else had yet settled. I was given a short orientation of what would be happening to me over the next few hours. I was also given a binder telling me about my treatment, the medicines I would be getting (and the possible side effects of taking those medicines), and resources I could refer to if I had questions not covered by the binder.

The preliminary medicines arrived, and it was time to connect to the port.

Prior to heading to my infusion center, I was instructed to put on a quantity of numbing cream over the port, over which I put a clear bandage. My job at the center was to expose the port while the nurse removed the bandage. After a quick clean of the area, a needle was inserted into the port.

OUCH!

First lesson learned. Use more of the numbing cream before heading to the infusion session. The poke wasn’t that bad. It was bearable and the pain was extremely short lived.

I finally settled in with my feet up and ready to roll. I read a little bit (starting to re-read Tolkein’s Lord of the Rings series of books) before I found another inmate, rather a pair of inmates settling on the opposite side of the section where I was sitting.

Through conversation, I learned that both were veterans – one Vietnam era, the other during Desert Storm. Both had experience overseas. The Vietnam Vet told stories of clandestine activities he had been aware of while he was there. I heard some of those stories before, passed along by a long-time friend who was part of the Vietnam experience. The Desert Storm Vet was quiet about his experiences. He spent most of his time in Germany, as did another long-time friend of mine who had a similar experience.

Both men were seasoned veterans of another sort; both had had several Chemotherapy treatments before this round; both were treated for lung cancer. The Vietnam Vet told of his first time around with Chemo when he was in a group of several other men. According to him, the other men in his group gave up after four or five treatments… those who quit died within three months of quitting treatment. Not something I wanted to hear while I was being infused for the first time. I still had aftereffects to deal with.

The most immediate aftereffect I had to deal with was using the bathroom. I tended to forget that I was being pumped full of liquids and that at some point, I needed to empty my bladder. The problem I had was that I was hooked to a machine that was plugged into the wall behind me. I finally worked up the courage to ask the nurse to unhook the apparatus from the wall so I could pilot the stand and myself to one of the two restrooms.

I waited too long.

No, I made it to the toilet with no leakage, but my prostrate was irritated by some of the drugs I had been given to the point that I had very little flow trickling down from a very full (and no doubt a very irritated) bladder.

Lesson learned; don’t wait too long to use the bathroom while being infused… and drink something else to make things easier on the prostate and the bladder

My Cancer Journey X

My Cancer Journey X

Again, a fortnight since my last entry. Some of it has to do with the cumulative effects the cavalcade of drugs has had on me. At this writing (February 6th), I am through three-quarters of my treatments with the last three treatments already scheduled. So, it is time to go over the drugs I will be taking in the next exciting episode…

A Walking Chemistry Set

Prior to my scheduled visits on October 9th, I had a look see at what my Oncologist will have injected into my body. The mix was developed specifically to target cells found in my rectum – the same cells found on my liver. After reading about the drugs, I spilled out the formula to those on my Facebook feed:

Still no word on when I start Chemotherapy. It’s one of those “Hurry up and wait” deals, I suppose.

My mail today contained the official approval of the drugs being used on me over a period of 24 weeks beginning whenever. I just did a Google search of the drugs being used. Quite the cocktail.

The list was headed with something called Oxaliplatin. Nothing to see here, that is, if you don’t mind a little nausea, vomiting, fever, fatigue, and hair loss. As a bonus, the Oxaliplatin contains Platinum – the same stuff used in Catalytic Converters. Probably not a good idea to let certain people know… I could find someone underneath me attempting to steal and sell the Platinum.

Some of the effects of Oxaliplatin are partially abated by a folic acid called Leucovarin. Side effects include skin rash, itching, and wheezing. I thought something was said about the drug causing an altered mental state. I wonder how I could tell.

Then there is Fluorouracil. I could find nothing about it on Google. I have concluded that no one really knows what the hell it is. Sort of like non-dairy coffee creamer.

Finally, there are a couple of drugs designed specifically to prevent nausea or vomiting. Well and fine until the last drug, something called Fosaprepitant. There was a whole raft of possible side effects connected with it – some of them I don’t wish to mention in mixed company.

And I have yet to ask about the possible effects of using CBD gummies in preventing nausea. I’ve heard that smoking cigarettes with no name on them does a cancer patient a lot of good – one of my neighbors indulges in the weed – but I quit smoking thirty years ago this weekend and I am not about to take up the habit again, even if it’s not tobacco this time.

All I have to do now is wait. I have enough drugs to qualify as a walking chemistry experiment. More when I get the word.

My immediate reaction after reading through the list was that I was about to become a walking chemistry set. As far as the aftereffects of the drug combination are concerned, they will be covered as this narrative continues.

I really don’t know if this treatment will cure me of my ills (or cure any stray cells residing in me) but I am positive that the regimen will do me better than some of the “cures” out there being offered by people lacking medical degrees.

Going back to 2016, the Food and Drug Administration listed no less than 187 fake cures for cancer. Not surprisingly, the fake cures gain attention from desperate people.

My father, for one, started taking Shark Cartilage pills, based on the premise that sharks don’t get cancer and that the pills would help to at least keep his Melanoma at bay.

It didn’t. He still had a bottle and a half of the shark pills when he passed.

Comedian Andy Kaufman was said to have traveled out of the country to someone who promised to remove Kaufman’s small-cell lung cancer – a miracle cure. Turns out that the cancer removed from Kaufman was chicken liver. The cure, ineffective. It did nothing but offer hope to people desperate enough to believe the cure would work.

Hope is what hooks people into believing in “Drugs” like “Laetrile” – derived from almond seeds, Laetrile had people in the United States driving down to Mexico after the FDA found that the drug didn’t work. In fact, Laetrile contained some of the building blocks of Cyanide. Cyanide may have killed the cancer cells, but at the same time, it would go on to kill the person taking the Cyanide as well.

And then there was a story of a Florida Man who, through his fake church, was convicted of selling bleach as a miracle cure for the dreaded disease. I feel sorry for those who bought into his scam.

Don’t get me wrong, there are plenty of legitimate purveyors of cancer treatments out there. Clinics abound with some degree of success. Places like “The James” at Ohio State University. The Mayo Clinic. Cleveland Clinic. M. D. Anderson here in the Lone Star State, as well as Texas Oncology. The cure, if you can call it that, ain’t easy. Writing this after just four cycles of Chemo, I can already attest to some of the difficulties I was told I might encounter.

For now, though, I plan to walk the reader through the process I’ve been going through as seen through my eyes… and through a little of my sense of humor.

Like when I described myself as a walking Chemistry Set.

As a side note to this chapter, I asked my Oncologist about taking Marinol for my decreased appetite. She prescribed something else and the request was denied. Something having to do with weight gain or weight loss medications not being allowed on Medicare. No big deal. At least for me…

My Cancer Journey IX

My Cancer Journey IX

With apologies to those of you following this blog. Last week, I was dealing with some unexpected financial matters. I will blog about what happened a bit later. During the meanwhilst, we are about to find out what happened during my next visit to my Oncologist…

The Devil in Details

“What happened to you and why didn’t you tell me?”

My Oncologist wasn’t very happy that I was in her exam room with a pair of crutches. She was equally unhappy that I had gone to the Emergency Room without telling her. My take was that I was too busy being in pain and hoping for an end to my misery to even think about calling her.

Carol was with me. She was introduced to My Oncologist. After the niceties, we got down to business.

Twelve rounds of Chemotherapy over 24 weeks, starting as soon as possible.

It wasn’t as if they had left a few cancer cells hanging out on my liver. They had all been ablated – they had disappeared, headed to a lab where someone in a lab coat determined that the cancer on my liver was the same sort of cancer found on my rectum two and a half years earlier.

She then told me that even though the cancer had disappeared, she was recommending a series of chemotherapy treatments to ensure that any stragglers that may have been in hiding would no longer be floating around in other parts of my body ready to attack. The reasoning was sound. So, why not?

There were several steps leading to treatment, the first being approval from the insurance people. Well, there were two approvals, the first being the installation of a port up in my chest so the drugs could be pumped into my system.

The first approval came rather quickly.

Two weeks after my consultation with my Oncologist, I was back at the hospital to have a port installed. The procedure itself took less than ten minutes and was done while I was semi-awake. Prior to the procedure, I was given topical anesthesia to cover for the small incision needed to insert the device. Just before the actual operation, I was given something that allowed me to be mostly awake while the device was installed.

A half hours’ worth of recovery and I was good to go, with Carol driving, of course.

Then there was the wait for approval of my treatment. My Oncologist advised me that she wanted to get me started as soon as possible – perhaps as soon as the Wednesday after the port was installed. Once every two weeks starting September 20th.

That ship sailed. Not unexpected, since I would have gotten the green light from my insurance carrier before any action needed to be taken.

In the meantime, I was scheduled for a couple of classes on how to be a cancer patient. At least that’s the way I describe it. The first class came nearly at the end of September. I had a session with a Nurse Practitioner via telemedicine. We had a lovely chat where she explained what I would be taking and in what order I would be taking each medicine. She then told me of what she would be prescribing for me to pick up at the Princeton Pharmacy. Of five prescriptions she sent, four were pills to be taken to prevent nausea and vomiting. The other was for a cream I was to put on the skin over the port an hour before my infusion started.

The second class was much like the first, except I met a different Nurse Practitioner in The Oncologist’s office where I had questions about the treatment I would start getting on Wednesday, the eleventh of October.

There were certain roadblocks left to go around. I had a pair of appointments with Texas Vision and Lazer Center, one on the same day of my visit with the Nurse Practitioner at the Oncologist’s office, and the other a week later, on what would be day 6 of my first round of Chemotherapy. One of the questions I asked was whether the drug the doctor at TVLC was going to interfere with any of the drugs I would be getting with my Chemo. I was assured that there was no problem, other than having Carol drive me to the session where I was going to have the dilation.

I made a call to my Primary Care Physician’s office about the continuing saga with my right leg. I was running short on Eliquis and wondered if I still needed to take it. My PCP said that he wanted to see what was going on himself. On Monday. The same day I was to have the session with my Oncologist’s NP and on the same day I was having my first session with TVLC. Fortunately my session with my PCP was later than either of the other two appointments.

My Monday (10/9) was, therefore, busy. In fact, I likened Monday and the rest of the week to resemble a Railway Timetable.

We’ll get back to what transpired later. Next, a word or two about the drugs I’ll be taking.

My Cancer Journey VII

My Cancer Journey VII

Happy New Year! Time to get back to my story from last summer…

Recovery

Home at last!

In pain, but I was home at last!

Carol and I planned to make me as comfortable as possible when I got home. I was still a bit woozy from what transpired twenty-four hours earlier. The dog Filbrix was more than happy to see me. She tempered her usual enthusiastic greeting, sensing my temporary infirmity.

There were some inconveniences, like the bandages.

I had four incisions, each covered by bandages designed to help hold my incisions in place until my body would hold together by itself. Used to be stitches, now instead, the pieces are held together with Superglue. I had instructions to leave the bandages on until they fell off in the shower, which I could not take for a day or two after surgery. Even though the surgery was at the tail end of August, I had no problem with going ahead and waiting inside – with the air conditioning.

Another inconvenience had to do with sleeping. Over the years I have become accustomed to sleeping on my belly, or at least sleeping on one side or the other. At home, like at the hospital, I had to learn to sleep on my back.

Carol may have had a premonition that there might be something going on requiring a hospital-type bed when we went to a home show six months earlier. It took considerable coaxing and 18 interest-free months of financing, but we went ahead and bought the bed. By the time I got back from the hospital, I still wasn’t used to the bed despite trying a variety of positions including something called “Zero-G.” It didn’t take me long that first night to figure out that I was not going to be comfortable in the fancy bed. The other alternative was the recliner in what passes for our living/family room. It worked well. Filbrix was happy to be able to watch me as I tried to sleep as best I could.

I could have slept better but for the fact that the narcotic prescribed by the doctor to ease my pain was not available at the chain drug store.[1] Carol was told that the drug in question would not be available until the following Tuesday. The day after Labor Day. That left me with Acetaminophen. In my mind, it was not really a good choice for someone like me who had had at least the edge of his liver cut away. There were warnings on the bottle stating that using so many pills in a certain time frame might cause liver damage. Other than the bit of cancer detected a month earlier, my liver was working quite well, thank you very much.

Pain was managed with the idea that maybe a miracle would occur, and the pills prescribed by the doctor would magically appear.

No miracles, but I was able to make it through the Labor Day weekend with just a little bit of problem. One problem averted by not having the narcotic was the constipation associated with narcotic use. Certainly I could tough it out until the following Monday when I was scheduled to see Dr. Palanisamy for my follow-up visit.

There were a couple of problems that caught me by surprise.

Since I was told not to lift anything over 20 pounds, I ran into a problem with the bed. One of the tasks I have set myself was to wash the sheets and make the bed on Fridays. Something I had noted was that the mattress tended to slip off to one side over the course of the week. It was no big deal for me to bounce the mattress off to one side while making the bed. With the weight restriction, I decided to ask Carol to make the correction when she got back from her job.

Well, I forgot.

In the middle of the night when I was attempting to get up to use the bathroom and let the dog out to do her business, I fell out of bed with the mattress coming down on top of me. It took me about five minutes to get up, have Carol put the mattress back on the bed, do what I had originally planned to do, and get back to bed.

On the chair in the living room.

I was thankful at the time, knowing that it could have been worse. I had passed a major hurdle with no other hurdles in sight between me and my visit with the oncologist.

I almost made it to that visit unscathed.

Almost…


[1] The name of the store and the name of the vendor of the bed are withheld. I don’t want any trouble.

My Cancer Journey VI

My Cancer Journey VI

For those of you following this blog, my apologies for not posting last week as previously scheduled. It was the Christmas thing. Now that we’re past that, let’s continue…

Showtime!

I had a leisurely drive from the house to the hospital for pre-admission testing, including blood work (every time I see someone, they want blood work) and an EKG to make sure that my heart was running as well as it should have. The process took less time to accomplish than the drive over and back to the hospital.

My appointment for surgery was a bit more complicated to say the least. It included pre-packaging what I needed and what I thought I needed for the overnight. Included in the backpack I took were a change of clothes (including a Savannah Bananas T-Shirt) along with the phone and the computer.

We arrived in the wee hours of Monday morning with my deductible. After taking care of the usual paperwork (accomplished mostly at home over the weekend), we went to the day surgery waiting room where I was called almost immediately.

Most of what went on after that was routine. Blood pressure, blood work, an IV inserted into my hand for what they would give me to go to sleep.

The nurse asked if I had any questions. I asked her to remind me to ask The surgeon his choice of Cincinnati chili joints. She told me that her preference was Skyline. She hailed from Northern Kentucky and knew the chili well.

I finally had the opportunity to ask the surgeon the same question. Skyline.

Unanimous.

The anesthesiologist paid me a visit. Nice young woman. I was impressed. No choice of chili, but I won’t hold it against her.

Came the time, I got enough of a buzz from the initial part of the anesthesia. I wasn’t completely out until after I was shoved over on the operating table and was breathing through a mask.

About two hours later, I was whisked out of recovery. Got to the room and almost immediately threw up what little I had in my stomach into a handy wastebasket.

Got moving way too fast.

Turns out that the operation took a little longer than the time initially allotted due to the scar tissue I warned the surgeon about. He got even by making me stay overnight instead of letting me go home.[1]

The dog Filbrix needed my attention. I missed her, too.

Post-operative instructions were issued when I was settled to a certain extent. No lifting, no sex, no… well, there were doubtless others to deal with as well as dealing with the pain. Even though the procedure I had to remove my gall bladder was basically the same as the procedure to go after the few cancer cells on my liver, there was a huge difference in the pain that I felt in the hours after the operation.

The biggest change was the pain in my shoulders. In the more recent procedure, there was none. Nada. Zip.

The first time the pain was definitely there, due to the fact that the procedure was to inflate the body cavity with gas while the surgeon did his thing. Gas may or may not have been used this time around. I didn’t bother to ask.

After getting settled in, Carol went back to the house to assure the dog Filbrix while I tried to settle down to rest… oh fudge! I need to use the bathroom!

Being sixty-nine, the nurses in the hospital would not just let me jump up, go to the restroom, and lay back down in bed. Something having to do with falling.

Falling for someone my age can be downright hazardous. Statistics lend one to believe that falling is a major cause of death among those of us on the high side of sixty. Baylor Hospital takes that statistic seriously, requiring me to use a walker under the supervision of a nurse just to take the five steps to the bathroom.

I wasn’t about to argue with the policy. I was in enough pain already, besides, the nurses there were sympathetic to my plight. By the clever use of a walker, some assistance from a nurse, and some clever stepping on my part, I was able to accomplish my mission with a minimum amount of fuss.

Several times.

Through the rest of the day into night.

And a long night as well.

Over the years, I developed the habit of sleeping on my stomach or in a fetal position, usually on my left side. There have been times when I was forced to sleep on my back, but I did not do so willingly. Overnight in Baylor was one of those times when I did not do so willingly.

Same thing when I was staying overnight in Baylor when a surgeon did the resection of my rectum a couple of years earlier.

This time I was closer to the nurse’s station – but more importantly I was just across the hall from the nurse’s break room. One or more of the nurses had a husband who prepared a meal for her that she would warm up in the microwave at odd hours day or night. I might have begged for something for myself had my appetite been a bit keener or if I hadn’t been on some type of narcotic pain killer. Between the various diversions, I didn’t get much sleep.

Carol came by after breakfast to pick me up to take me home. When we were almost to the point of leaving, I got dressed in a Savannah Bananas T-Shirt matching the one Carol was wearing.[2]

Naturally, there were hoops to go through before discharge, including drawing blood and the usual rigamarole with getting my vital signs. Too, there was the matter of taking out the lines used to feed my anesthesia and whatever else they wanted to pump into my body.

That’s right, I said lines. When the initial line was put in, I was told that there might be another line in the other hand when I woke up from the surgery. Lo and behold, that’s what I found when I woke up. A second line waiting to be tapped.

It never was.

I thought that when I was told that they were going to take a blood sample before my discharge, they would do the convenient thing and use the second line in my hand as a collection point. Instead, there was yet another collection done on the inside of my elbow. Where I had donated blood to the lab on previous occasions and where I donated whole blood back in the day before I became ill.

Both lines were removed and I was finally discharged.

I can’t help but to think of the line on M*A*S*H that Major Winchester uttered when  finding a rubber chicken in his coffee pot: “Get me the hell out of here!”

Don’t get me wrong. The people working in the trenches of Baylor, Scott and White are the very best I have encountered. Love ‘em to death. But I’d rather be at home.


[1] The surgeon told me going in that he kept his patients overnight when we had our initial consultation. It wasn’t a surprise.

[2] The Savannah Bananas is a baseball team… the baseball equivalent of the Harlem Globetrotters. I purchased the shirts prior to a trip we made a few months earlier to visit my daughter, Sarah, in Savannah.

My Cancer Journey V

My Cancer Journey V

The Coming Attraction

As I had mentioned previously, my appointment to have an upper body MRI had me arriving at Baylor Hospital in McKinney at six-thirty on a Tuesday morning. I arrived to find there were two other parties in line before me. One was a woman with an entourage waiting for surgery, the other was a pregnant woman about to burst and her husband. The person at the front desk called out a last name and both parties stirred. Both had last names that were quite similar.

While that situation played out to a conclusion, another woman came in, looking as tired as I was. In the meantime, the sole woman at the front desk was trying her best to do her job.

A second operative finally came to the front desk. She and I went through the paperwork, ran the card for the deductible, and proceeded to the empty radiology waiting room.

The show for me was supposed to start at 6:45.

There was no one able to get me going on the machine until a little before 7:00.

I knew the drill and the tech knew me. He was a little puzzled, having seen me a little less than three weeks earlier. When the situation was explained, we were able to work on getting the session done while having short bursts of conversation before and after we did the deed. When we were done, it was back home to wait until my appointment with the surgeon the following Monday.

*****

To this point, my struggles with doctors were confined to my Primary Care Physician in Allen (about 7 miles away) and to the other doctors, the hospital and the cancer clinic ten miles away in McKinney. The surgeon’s office is in Plano – a good 15–20-mile drive from my home in Princeton.

Carol and I were quite aware of where the surgeon had set up shop in an office building adjacent to Baylor Scott and White’s Plano location. We spent our first anniversary at that hospital – Carol had a double mastectomy ridding her of some suspicious lumps that kept popping up. Adding to the irony, the surgeon who performed the mastectomy on Carol shared an office with the surgeon who was going to work on me.

I was impressed with the man. His overview of what I was to expect was quite thorough. He laid out several scenarios before telling us (Carol was with me) what would be the best scenario for everyone involved. The sample needed by the surgeon was too small to attempt a “Needle Biopsy”, so instead, he proposed a bit of laparoscopic surgery instead.

Been there, done that. Have the T-Shirt.

I remember waking up early, like 4:00am on a Sunday morning early, to intense abdominal pain, thinking I was about to have a heart attack. A trip to the ER eventually revealed that I had gallstones in a gall bladder that needed to be taken out.

The following Friday, May 8,1992, I was in the hands of a surgeon who successfully removed my gall bladder, assisted by one of the local OB/Gyns working the camera. The reason I am specific on the date was that on May 9th, Bruce Springsteen made his first appearance on Saturday Night Live. I was on meds, zonked out of my gourd, but I was sure as sin not going to miss The Boss on SNL!

Two takeaways from that experience were relayed to the surgeon thirty-one years later. When my gall bladder was taken out, the surgeon complained after the fact that was a lot of scar tissue from a previous bit of surgery. Fair warning for the upcoming surgery. The other was my having to pay an Ob/Gyn for his part in the surgery. I was amused at the time and am still amused to this day about “My Gynecologist.”

The surgeon was similarly amused.

With the chit-chat out of the way, we determined to arrange for surgery at Baylor Scott White in McKinney as soon as arrangements could be made.

That left me time to think about a few other things, like scars. While making out an entry for my personal blog, I got to thinking about the other scars I’ve had on my body over the years and got to thinking about those scars.

First and foremost was the scar on the right side of my belly gained when an unknown doctor cut into one-month-old me to relieve my pyloric stenosis. That scar was the one creating the scar tissue the surgeon going in after my gall bladder (with the assistance of my OB/GYN) complained about when he ran a video of his work afterwards. The pyloric stenosis scar grew with me. I learned later on, that cuts for pyloric stenosis were moved from a prominent place on the abdomen to just under the rib cage where the scar would be a lot less noticeable. When I worked in the oil patch[1], one of my co-workers came to work his two-week stretch worried about his newborn son’s diagnosis of pyloric stenosis. I showed him my scar, told him about the newer way surgeons would make a cut, and assured him that since I survived 28 years with the affliction, his son would surely do the same.

Other scars included (not counting my circumcision) included one where a cyst was taken out of my backside, one of the four incisions made for the removal of my gall bladder, one for a hernia repair, and the inside my rectum cut for the resection of said body part.

I made the choice to count however many cuts made for my upcoming surgical appointment as part of a larger collection… making what for some would be considered some sort of life altering experience. What’s one more cut to a pro, eh? For that matter, how many men can honestly say that they had work that included the services of an OB/GYN?

*****

A week and a half later, I got the call.

I was scheduled for pre-admission testing on the 24th of August, followed by surgery early in the morning on the 28th.


[1] Between 1980 and 1984 I worked as a roustabout on offshore oil rigs run by Keydril. Two weeks on and two weeks off. It was quite the adventure. The incident mentioned here occurred on Keydril’s Aleutian Key.

My Cancer Journey IV

My Cancer Journey IV

Life in Temporary Limbo

For the better part of three weeks, I had to wait out the machinations behind the scenes at various doctors offices and the insurance company handling my Medicare account.

There really wasn’t much to do except try to live my life as best I could, taking care of what I needed to take care of to keep the household running. It was during this period that I made the decision to keep track of my disease and post what I could on the internet.

I started with a couple of synopsis on Facebook. I started with a remark about missing the Trifecta, followed by a more complete recap on the Sunday following the news from The Oncologist. I ended the entry with a bit of serendipity:

“The next steps include an MRI, a visit with a different surgeon, and an appointment with the Oncologist – probably after the surgeon goes fishing in my body for a sample.

The first couple of weeks in August will probably be quite interesting.

I am upbeat.

If I ended up having to have Chemotherapy, I could pretend that I’m Lex Luthor![1]

Not to minimize some of the battles other people of my acquaintance have had with “The Big C.” Cancer is a big deal. I am thankful that my journey so far has been as easy as it has been.”

And so it goes.

I took the time to write in my personal blog space courtesy of WordPress at bdharrellauthor.com, too. I did two entries at WordPress in relatively short order. The first was a recap of my situation. The second was more of a reflection.

Cancer, it appears, runs in the family.

My father died of a Melanoma that migrated to his brain less than six months after his 71st birthday.

My mother developed throat cancer and died at the tender age of 86.

My maternal grandfather also had throat cancer, but he died just short of his 93rd birthday.

Mom’s sister died of a massive stroke while she was under treatment for cancer – Dad’s sister had cancer and survived several years before she passed.

I pointed out that I was just 69 with aspirations of living to the ripe old age of 102, killed by a jealous lover.

Another part of the blog was about the connection of tobacco use and cancer. My parents both smoked – Mom quit when she was 40, Dad never really did quit. Mom’s sister and my maternal grandfather both used tobacco. I used tobacco myself until I was thirty-nine.

******

Aside from my forays on the web, I had other concerns. The Dog Filbrix[2], for example, was due for a trip to the vet. On the day I took her, I got a call from the people doing the MRI getting me set up for the first day in August at the ungodly hour of 6:30 in the morning. It was one of those “I have to take it” deals because of the call I got a day or two earlier setting up an appointment to see the surgeon on the seventh.

I wasn’t complaining.

To be scheduled to see a surgeon less than three weeks after the consultation telling me that there was something on my liver appeared (to me) to be rather quick. I was asymptomatic and had no idea that something was wrong, other than being told by the Oncologist that there was something wrong.

And that says a lot about early detection.

Many people wait until there’s a problem, or a number of problems before going to see a doctor and finding out that they have a bigger problem than the one they bargained for. At the time I’m writing this (Early November) I have been following the case of a friend in Ohio who was having trouble sleeping to begin with, along with several other problems at the same time. Eventually (over a period of several months) he was diagnosed with and will be undergoing treatment for Stage 3 lung cancer. His case will come up later as I blog my own experiences.

While I was waiting for the new MRI and my visit with the surgeon, I developed a set of questions to be asked at the appropriate time. I also started to look at what was happening to, or around me, with a sense of humor.

Humor is a defense mechanism I employ quite often. Humor helps to take the edge off.

In my personal library is the book Humor Works, written by John Morreall, Ph.D. (HRD Press Inc. 1997 – ISBN 0-87425-400-0), generously donated by my Mother-In-Law a few years ago. The book confirms that humor can take the edge off a tricky situation for some of us.

I am one of those people.

Being an old fart, I’m allowed.


[1] After writing this entry into my Facebook feed, I found that the current generation of people are not familiar with Superman’s nemesis, Lex Luthor. If it is of any help, perhaps I should bring up a different character. Doctor Evil, as portrayed by Mike Meyers in the Austin Powers movies.

[2] I refer to The Dog Filbrix as The Dog Filbrix because of my daughter. She became enamored of a friend’s small dog, referring to it as The Dog Aderick. She was three, maybe four at the time. Filbrix is on me. When I was a youngster at about the same age, I had a stuffed dog I named Filbrix for some unknown reason. I will have more about the dog Filbrix later on in this narrative.

Photo = My not still 4-year-old daughter and the dog Filbrix

My Cancer Journey III

My Cancer Journey III

This week’s installment is shorter.

Shorter is not intentional – rather, it just turned out that way. This past week (11/21-28/2023) straddled the Thanksgiving Holiday, posing a challenge that will be covered later. Another challenge that came up was in the form of a book sent to me by my sister and her husband. Reading it last night, there was something came up that caused me to do a quick re-edit… having to do with the privacy of the patient and doctor(s). Instead of naming the names of the professionals involved in my care, I will be referring to them in terms of the care they are giving me. I may change the edits later.

Starting Out

The second round started on the 19th of July 2023.

As I mentioned before, I was upbeat about my appointment with the Oncologist. After all, my appointment with my Primary Care Physician the previous Wednesday went well, and there was no news from the surgeon who did the resection from the MRI she had ordered less than a week earlier. My presumption was that no news was good news, so, my visit with the Oncologist would provide me with a medical “Trifecta” that would make me feel really good about myself and my long-term prognosis.

It had been a little over two years since the initial colonoscopy and follow-up surgery. The Oncologist kept me “under observation” with visits every quarter, sliding to visits every six months after a year of quarterly visits. Six months prior to my July visit, I was handed off to a Nurse Practitioner with the promise that my visits would alternate with the good Doctor and the Nurse Practitioner for the remainder of the five-year observation period.

Fine by me.

Just after my visit with my PCP on the 12th, I went to the cancer clinic for a CAT scan at the Oncologist’s request. It was a simple visit. The tech and I had met on several previous occasions. We both knew what needed to be done and the visit was over almost as soon as it started. The only problem I had was with what is called the contrast. There was a newer tech being trained and she had some problem finding a vein. She managed to get me my first bruise from either giving or taking blood. I excused the tech trainee on the basis of lack of experience.

The week between my visit with my PCP and my appointment with the Oncologist went well. Nothing unusual. Took care of some bills, coped with the heat, went shopping, you know, the usual. No word from the surgeon from the MRI she ordered for me, so I presumed that when I went to see the Oncologist on the morning of the 19th at 9:40am that we would have a pleasant visit and I would walk out with a Trifecta.

Missed it by that much.

The Oncologist told me that when looking at the CAT scan, she and the tech had noted a 3cm growth on the edge of my liver.

Now, three centimeters isn’t very much. Just a little over an inch. But those three centimeters are enough to cause concern. We’re talking in terms of a vital organ. While the Oncologist spoke of possible treatment options, my head was trying to wrap around the fact that the cancer I thought I was rid of had made an encore performance.

The good news that morning was that the offending cancer was small and likely excised with little or no problem. The not as good news was that there would definitely be some additional treatment involved. Radiation was mentioned. Chemotherapy was mentioned. There would have to be a biopsy and the involvement of another surgeon. The Oncologist mentioned several choices of surgeon. I asked her which surgeon she would trust. She told me. I told her that if she trusted the surgeon she recommended, I would trust her judgement.

The choice was made. Orders were sent.

All I had to do was to wait for the call to see when I would see the surgeon.

My Cancer Journey II

My Cancer Journey II

If you are following or thinking of following this thread, good news. I have decided to publish chapters on Tuesdays. Hopefully without fail.

Here’s the second installment:

Allow me to introduce myself.

My name is Bruce, although I have had several monikers attached to me by myself and others.

For instance, someone on my high school yearbook took a picture of me playing my cello with the legend, “It’s Harpo! It’s Chico! It’s Groucho! No, it’s Bruco!”[1] I adopted the moniker a couple of years later when I was on the radio as “Bruco in the Nighttime.”[2] Radio was one of several career stops along the way. We’ll get there in just a bit.

When asked where I am from, I tell people that I was born in Maryland, weaned in Pittsburgh, went to elementary school in the Cleveland Ohio area, and to high school in Chillicothe Ohio. As this story unfolds, I have been living in what I refer to as my little corner of the DFW Metromess since 1998. This current location marks the second time I’ve lived in Texas – I lived in a corner of Houston back in the early ‘80s.

I am the oldest of six and the furthest flung. Three of my siblings live in Ohio, the other two are in Indiana and Maine.

My parents were the younger siblings of their respective families. Dad had an older sister living in Houston. Mom’s sister lived in West Virginia, less than fifteen miles from where she and my mother were raised.

Mom, her sister, Dad’s sister, and one of my own sisters were nurses. When it came to my health, they pulled no punches. That’s why I appreciate my care team. I can ask questions and get direct answers.

As you probably guessed from the previous entry, I am married to a woman named Carol. She’s a nurse, too.

Carol is my second wife (and I am her second husband). My first wife, the mother of my two children, is seldom mentioned by me. There’s a certain amount of enmity between us that isn’t helped any by my referring to her as “The Previous Regime.”

My second wife is nicer.

Like many “Baby Boomers,” I’ve had more than one “career” in my lifetime. Radio, for instance, was something that I was sort of born into. Robust, distinctive voice, and a penchant for trivia helped me to maintain my own in the medium. To this day, I encounter people who remark about my voice, asking if I’ve ever been on the radio. I admitted so to a couple I was in the process of selling at a well-known home improvement store here in the Metromess[3] that indeed I had been on the radio in southern Ohio. The woman immediately told me what radio station I worked in Ohio (much to my surprise), revealing herself to be the older sister of one of my running buddies.

Small world.

While performing on the radio may seem attractive, the downside is that wages suck. I’ve borrowed the term, “Minimum wage and all the records you can eat.” With the current state of the art, there are no longer records to eat – only what’s blowing around in this ether called the internet.

I had a six-year hiatus from radio in the eighties. Three years each working as a roustabout on an offshore oil rig, three years attempting to run a business I had purchased. I lost he money I saved working offshore running the business.

When I went back into radio for the next six years, the way radio did business was starting to change. I managed to make more money than I did previously, but still not enough to support a family.

There was a short time when I worked in the circulation department of a local newspaper, followed by what I consider to be my second real career selling major appliances for three “Big Box” stores.

Enough of my work history.

I believe I covered my personal history, too.

After “retirement,” I took up writing for fun and losing money. When this second round of cancer came about, I put aside some of what I was writing, to write about this new phase of my life.

Can’t wait to see how this all works out!

******

Two things should be noted here.

For one, this book, or guide, or whatever this turns out to be, follows notes I made on my Facebook page and on my WordPress site – bdharrellauthor.com

For the other, not everyone’s journey is the same. These are my impressions and may not be what you would expect if you are on this journey yourself.

Let’s hope you don’t have to go on that journey. If you do, let others know. You won’t believe the amount of support you’ll get.


[1] Pronounced – Brew-So, following the Marx Brothers’ theme.

[2] Not to be confused with “Cousin Brucie” AKA “Cousin Bruce Morrow” or with Don Imus’ “Imus in the Morning” which was being broadcast at the same time.

[3] A friend of mine used the term “DFW Metromess” a couple of years ago. I decided to appropriate (steal) the term to use as my own. After all, “Plagiarism isn’t stealing, it’s merely recycling!” – Professor Peter Schickele

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